410 ILCS 460

in effect

410 ILCS 460/131-1

(410 ILCS 460/131-1) Sec. 131-1. Short title. This Article may be cited as the Sickle Cell Prevention, Care, and Treatment Program Act. References in this Article to "this Act" mean this Article. (Source: P.A. 102-4, eff. 4-27-21.)

410 ILCS 460/131-5 Definitions

(410 ILCS 460/131-5) Sec. 131-5. Definitions. As used in this Act: "Department" means the Department of Public Health. "Program" means the Sickle Cell Prevention, Care, and Treatment Program. (Source: P.A. 102-4, eff. 4-27-21.)

410 ILCS 460/131-10 Sickle Cell Prevention, Care, and Treatment Program

(410 ILCS 460/131-10) Sec. 131-10. Sickle Cell Prevention, Care, and Treatment Program. The Department shall establish a grant program for the purpose of providing for the prevention, care, and treatment of sickle cell disease and for educational programs concerning the disease. (Source: P.A. 102-4, eff. 4-27-21.)

410 ILCS 460/131-15

(410 ILCS 460/131-15) Sec. 131-15. Grants; eligibility standards. (a) The Department shall do the following: (1)(A) Develop application criteria and standards of eligibility for groups or organizations who apply for funds under the program. (B) Make available grants to groups and organizations who meet the eligibility standards set by the Department. However: (i) the highest priority for grants shall be accorded to established sickle cell disease community-based organizations throughout Illinois; and (ii) priority shall also be given to ensuring the establishment of sickle cell disease centers in underserved areas that have a higher population of sickle cell disease patients. (2) Determine the maximum amount available for each grant provided under subparagraph (B) of paragraph (1). (3) Determine policies for the expiration and renewal of grants provided under subparagraph (B) of paragraph (1). (4) Require that all grant funds be used for the purpose of prevention, care, and treatment of sickle cell disease or for educational programs concerning the disease. Grant funds shall be used for one or more of the following purposes: (A) Assisting in the development and expansion of care for the treatment of individuals with sickle cell disease, particularly for adults, including the following types of care: (i) Self-administered care. (ii) Preventive care. (iii) Home care. (iv) Other evidence-based medical procedures and techniques designed to provide maximum control over sickling episodes typical of occurring to an individual with the disease. (B) Increasing access to health care for individuals with sickle cell disease. (C) Establishing additional sickle cell disease infusion centers. (D) Increasing access to mental health resources and pain management therapies for individuals with sickle cell disease. (E) Providing counseling to any individual, at no cost, concerning sickle cell disease and sickle cell trait, and the characteristics, symptoms, and treatment of the disease. (i) The counseling described in this subparagraph (E) may consist of any of the following: (I) Genetic counseling for an individual who tests positive for the sickle cell trait. (II) Psychosocial counseling for an individual who tests positive for sickle cell disease, including any of the following: (aa) Social service counseling. (bb) Psychological counseling. (cc) Psychiatric counseling. (5) Develop a sickle cell disease educational outreach program that includes the dissemination of educational materials to the following concerning sickle cell disease and sickle cell trait: (A) Medical residents. (B) Immigrants. (C) Schools and universities. (6) Adopt any rules necessary to implement the provisions of this Act. (b) The Department may contract with an entity to implement the sickle cell disease educational outreach program described in paragraph (5) of subsection (a). (Source: P.A. 102-4, eff. 4-27-21.)

410 ILCS 460/131-20 Sickle Cell Chronic Disease Fund

(410 ILCS 460/131-20) Sec. 131-20. Sickle Cell Chronic Disease Fund. (a) The Sickle Cell Chronic Disease Fund is created as a special fund in the State treasury for the purpose of carrying out the provisions of this Act and for no other purpose. The Fund shall be administered by the Department. Expenditures from the Fund shall be subject to appropriation. (b) The Fund shall consist of: (1) Any moneys appropriated to the Department for the Sickle Cell Prevention, Care, and Treatment Program. (2) Gifts, bequests, and other sources of funding. (3) All interest earned on moneys in the Fund. (Source: P.A. 102-4, eff. 4-27-21.)

410 ILCS 460/131-25 Study

(410 ILCS 460/131-25) Sec. 131-25. Study. (a) Before July 1, 2022, and on a biennial basis thereafter, the Department, with the assistance of: (1) the Center for Minority Health Services; (2) health care providers that treat individuals with sickle cell disease; (3) individuals diagnosed with sickle cell disease; (4) representatives of community-based organizations that serve individuals with sickle cell disease; and (5) data collected via newborn screening for sickle cell disease; shall perform a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and the sickle cell trait in Illinois. (b) The study must include the following: (1) The prevalence, by geographic location, of individuals diagnosed with sickle cell disease in Illinois. (2) The prevalence, by geographic location, of individuals diagnosed as sickle cell trait carriers in Illinois. (3) The availability and affordability of screening services in Illinois for the sickle cell trait. (4) The location and capacity of the following for the treatment of sickle cell disease and sickle cell trait carriers: (A) Treatment centers. (B) Clinics. (C) Community-based social service organizations. (D) Medical specialists. (5) The unmet medical, psychological, and social needs encountered by individuals in Illinois with sickle cell disease. (6) The underserved areas of Illinois for the treatment of sickle cell disease. (7) Recommendations for actions to address any shortcomings in the State identified under this Section. (c) The Department shall submit a report on the study performed under this Section to the General Assembly. (Source: P.A. 102-4, eff. 4-27-21.)