(a)
The California Health and Human Services Agency shall establish an Alzheimer’s Disease and Related Conditions Advisory Committee representing the diversity of California and that consists of at least 17, but not more than 21, members, which shall include, but not be limited to, all of the following:
(1)
One representing the
field of academic medical research.
(2)
One representing the field of social research.
(3)
One representing the field of behavioral health.
(4)
One representing organizations providing adult day care services focused on persons living with Alzheimer’s disease or related conditions.
(5)
One representing the
California Alzheimer’s Disease Centers.
(6)
Two representing families of persons directly affected by Alzheimer’s disease or related conditions.
(7)
Two representing organizations providing services to persons living with Alzheimer’s disease
or related conditions.
(8)
One representing a consumer organization representing persons with Alzheimer’s disease or related conditions.
(9)
One representing a member of the State Bar who is familiar with the legal issues confronting those living with Alzheimer’s disease or related conditions and their families.
(10)
Two people who have been diagnosed with Alzheimer’s disease
or a related condition.
(11)
The Executive Director of the California Commission on Aging or the director’s designee.
(12)
The Secretary of California Health and Human Services or their designee.
(13)
Two ex officio, nonvoting members, consisting of one Senator appointed by the Senate Committee on Rules and one Member of the Assembly appointed by the Speaker of the Assembly. These members shall participate in the activities of the committee to the extent that their participation is not incompatible with their respective positions as Members of the Legislature.
(14)
Up to four additional members selected by the Secretary of California Health and Human Services.
(b)
Members described in paragraphs (1) to (11), inclusive, and paragraph (14), of subdivision (a) shall serve at the
pleasure of the Secretary of California Health and Human Services. Members described in paragraph (13) of subdivision (a) shall serve at the pleasure of their appointing authority. The agency secretary may establish fixed terms for advisory committee membership. For purposes of continuity, those terms shall be staggered.
(c)
Members shall serve without compensation, but shall receive reimbursement for travel and other necessary expenses actually incurred in the performance of their official duties.
(d)
The Alzheimer’s Disease and Related Conditions Advisory Committee shall do
all of the following:
(1)
Provide ongoing advice and assistance to the administration and the Legislature as to the program needs and priorities of the target population.
(2)
Provide planning support to the administration and the Legislature by tracking, monitoring, and considering recommendations made in the final report of the Governor’s Task Force on Alzheimer’s (Disease) Prevention and Preparedness, and the California Master Plan for Aging, in addition to other state plans and reports, including the California State Plan for Alzheimer’s Disease, as
needed.
(3)
Appoint a chairperson and vice chairperson.
(4)
Meet quarterly.
(e)
The Alzheimer’s Disease and Related
Conditions Advisory Committee shall do all of the following when making policy and plan recommendations:
(1)
Consult with a broad range of stakeholders, including, but not limited to, people diagnosed with Alzheimer’s disease or related conditions, family members or informal caregivers, community-based and institutional providers, Alzheimer’s disease or related conditions researchers and academicians, direct
care workforce, the Alzheimer’s Association, the California Commission on Aging, and other state entities.
(2)
Consider cultural and linguistic factors that impact persons with Alzheimer’s disease
or related conditions
and their families who are from diverse communities.
(3)
Review current state policies and practices concerning care and treatment related to Alzheimer’s disease and other related conditions, as well as risk reduction, and develop
recommendations concerning all of the following issues:
(A)
Community-based support for California’s racially, ethnically, culturally, and linguistically diverse people living with Alzheimer’s disease or related conditions and their family members or informal caregivers.
(B)
Choices for care and residence for persons with Alzheimer’s disease
or related conditions and their families.
(C)
An integrated public health care management approach to Alzheimer’s disease or related conditions in health care settings that makes full use of dementia care practices.
(D)
The dementia training and competence of health care professionals.
(E)
Risk reduction, early identification, and intervention through
increasing public awareness of Alzheimer’s
disease and related conditions, as well as brain health.
(f)
All meetings of the advisory committee, and any subcommittees thereof, shall be open to the public and adequate notice shall be provided in accordance with Article 9 (commencing with Section 11120) of Chapter 1 of Part 1 of Division 3 of Title 2 of the Government Code.
